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Mauli Ola Foundation Golf Tourney
Author: Transworld Surf
We are looking for sponsors, donations (for silent auction and raffle prizes) and team entries. We expect the tournament to sell out fast, so sign up early to claim your spot! Also, if you know of others that would like to play in this golf tournament, please pass this email onto them. Thank you!
All forms can also be found by going to www.mauliola.org/golf.
Please contact Steve Swanson if you have any questions about the tournament. sswanson@mauliola.org
Additional Event Information:
CF Surf Experience Days were created to get kids and young adults who suffer from the lifelong debilitating disorder of Cystic Fibrosis, which primarily affects the lungs, out into the ocean where they can benefit from the natural ocean air. It has been discovered that breathing in hypertonic saline (salty water air) helps breakdown the congestion that lines the lungs, thereby allowing for the release of the mucus and inevitably breathe easier. Through the constant work of foundations such as Mauli Ola, better treatments and eventually a cure are hopefully in the near future. Your support at the golf tournament provides surf experience days for people with Cystic Fibrosis.
Cystic Fibrosis (CF) is a hereditary genetic disease. Because of this, there is no risk of “catching” CF from another person with CF. Approximately 1 in 20 people in the United States are carriers of CF, which makes it the most common genetic defect of its severity in the United States. The name of the gene that leads to CF is known as CFTR and this gene creates a specific protein. This protein controls the flow of chloride ions across the cell membrane. People with CF suffer from chronic lung problems and digestive disorders. Many people with CF require frequent hospitalizations and constant use of antibiotics, enzyme supplements and other medications. People with CF used to have a life expectancy that was very short. 30 years ago the average life expectancy was about 8 years and today people with the disease can now expect to live well into adulthood.
Surf Experience Days are organized through the Mauli Ola Foundation with special assistance provided by surf schools and surf industry companies. Each participant at the surf school is paired up with a professional surf instructor who gives water safety training and surf lessons prior to entering the water. Typical events last between 2-3 hours and are offered during summer time conditions. We encourage all people who have CF to sign up for Surf Experience Days to be a part of something life changing. Our prior events have been extraordinarily remarkable with surf participants looking forward to future CF Surf Experience Days. All CF Surf Experience Days are free for anyone with Cystic Fibrosis.